autism · crafts & knitting · general stuff

summer days

Summer has arrived here in this little corner of England. The last few days have been wonderful weather-wise and over the weekend our whole family has been outside  – the sunshine even coaxed Amy out of the teenage stereotype of preferring bedroom living ๐Ÿ™‚

I've been sitting in the shade at the end of the garden and working on some end of term presents for Toby's teachers. I plan to pair each strawberry bookmark with a pretty note book and pencil and wrap them up nicely.

 

Strawberrymaking

Free pattern from Pezdiva (with a few adaptations).

 

Strawbs

Toby has of course been enjoying bouncing, swinging and paddling

 

Paddling pool

even the chicken has been enjoying the hot weather with a paddle in her own pool

 

Paddling

Poor H has been the only one not relaxing or keeping cool – he's still been hard at work building paths and paving around the garden room.

 

Garden work

I am also working on a little batch of knitted animals. It's been a while since I offered any for sale so I hope to have them finished soon, I'll post some pictures when they're ready.

Talking of knitting, thanks so much to Love Knitting for featuring little cotton rabbits as their blog of the week last week.

Thanks too to all of the people who sent me emails and messages about the book of the week on radio 4. 'The reason I jump' is written by Naoki Higashida an autistic boy living in Japan and takes the form of questions put to him and his answers. It is a fascinating and thought-provoking insight into the world seen from an autistic perspective. My copy arrived yesterday and I'm already halfway through (and scribbling notes to myself as I go). The introduction by David Mitchell is brilliant and any parent of an autistic child will be nodding in agreement and probably like me welling up with tears at reading things that so often go unsaid.

 

Book2

The book itself is revelatory and has again made me tearful many times, both in recognition of the huge implications it could have in the way that others perceive those with autism and because current state schooling often deeply underestimates and mis-interprets many autistic children. My head is literally buzzing and I'm trying to think where we go from here in order to give Toby a way of communicating all that is in his head (rather than just his basic wants), because there is a lot more going on in there than most people give him credit for. I'd urge anyone involved with any aspect of caring for autistic people to read this book, it is an eye-opener and has the potential to change lives.

Thanks as always for popping in to visit. See you again soon

 

garden stuff · general stuff

garden room

Well, half term last week was a bit of a wash out really. The first half of the week was wet and windy and in the second half we all came down with stinking colds. Still, it was impossible to feel downhearted because we now have this at the end of the garden ๐Ÿ™‚

 

Garden house

It is everything we had hoped it would be, and more. Toby adores it and has been in and out of it constantly, enjoying exploring every inch of it.

 

Toby explore

In fact he was in and out of it even before it was finished.

 

Tobyexplore

He was fascinated by the activity in the garden when it was being built. And what a mammoth amount of activity there was! The guys from Planet Design were absolutely and completely awesome. They worked hard through all weathers, right through the days of
non-stop heavy rain and even a hailstorm didn't put a stop to the
construction.

 

Working

They put in three hard weeks of back breaking work but always kept their good humour and they were a pleasure to have around. To be honest I missed them a bit once they'd packed up all of their tools and finished and I think Toby did too. He loved watching them working while he bounced on the trampoline and they were so friendly and kind with him (and very tolerant of his attempts to join in!). We're so thankful to them for building us the room of our dreams.

 

Lights

 

There is no way though that this would ever have been possible without the amazing and humbling generosity of our family and friends (and friends of friends). Two and a half years ago H and I were balancing on the brink of despair. At the time Toby was having frequent and extreme meltdowns and I was regularly driving him around in the middle of the night just to get him out of the house so that Amy could get some sleep. We used to talk about things that might make the situation more bearable and ways we could cope long term (because we know that similar periods of behaviour are more than likely in Toby's future). We imagined having a space where one of us could take Toby when things were hard so that the rest of the family could get some peace or where Amy could go to concentrate out of earshot of Toby if he was in the house. The costs involved put it out of the question though and it stayed a distant dream until H's Mum and Dad decided they would like to ask for donations rather than presents for their Golden Wedding anniversary party. All of the guests that came to join them in celebrating were so very generous and the Toby Respite Room fund started growing. Extended family and friends have continued contributing both their own money and money they have raised through sponsored events, runs and raffles and we have been constantly moved by how kind and supportive everyone has been.

We were so very touched when the artist Jim Crouch donated one of his wonderful paintings and the proceeds from the sale of that and of several limited edition prints went into the fund. Both of our sets of parents have been incredibly generous too.

It is impossible to find the right words to express how deeply grateful we are to everyone whose kind heartedness has made building this room possible. It makes the future with Toby a bit less scary as it gives us options in times of stress. We now have a separate space to take him to when he needs calm and quiet and refuge that is quiet and peaceful and 'away' for the rest of the family to use when needed. At the moment there is still a fair bit to do such as paving, planting and the like and inside there is only a beanbag at the moment as we're waiting on furniture. Once it's all furnished and bedded in I'll take some more pictures.

 

Inside

Before I go I'm going to give the guys from Planet Design another mention because so often having work like this done on your home can be such a stressful thing (especially with a child like Toby around). But it was clear from the outset that they were completely committed to building us a perfect room, finished exactly on schedule and on budget and this took away all of the stress for us. So thanks Lee, Luke, James, Troy and Tony for building us such a wonderful, hassle free room.

garden stuff · general stuff

hello again

Thanks for dropping in and thanks for the kind messgages that I've had over the last couple of days asking if things are OK. They are, and I hadn't meant to be away for so long. I had intended to pop my blogging head on again the day the children went back to school but when I looked I couldn't find it! I suppose it's a little to do with getting out of practice but there is also the fact that my head feels stuffed full of thoughts about so many different things right now. The Easter holidays were quite difficult and a couple of different things happened which were unsettling and upsetting. When things are complicated I try to seek out ways to simplify our life here and I'm making lists and jottings in an attempt to order my thoughts, hopefully that will help me feel normal again soon!

I did have a few laughs when I discovered a brilliant blog written by the dad of an autistic boy. He wrote a wonderfully funny piece for the BBC website about the dreaded school holidays which I completely identify with, it's a good read if you have time. I also read a fair bit of his blog My Son's not Rainman over the Easter break and it helped me hang on to my sense of humour which was in danger of becoming a bit threadbare.

 

Malabrigo

It is good to be back in term time again and have a little time for peace and quiet. I am currently enjoying pondering plans for this basket of
recently acquired malabrigo. I'm also busy making
hedgehogs for the next class I'm doing at the Creative Sanctuary in May. There
are a couple of spaces left if anyone is interested in coming along,
booking details are here
.

It's nice to have some warmer weather at last too, happily Spring now seems to have properly arrived and over last weekend Toby was joyfully reacquainted with bubbly bouncing time on the trampoline! There are blackbirds nesting in the clematis outside the back door and the bluetits are checking out the bird box on the plum tree. Luckily neither of them seem disturbed by the work going ahead in the garden. H has worked like a horse over the Easter break carting barrowloads of our old patio away and taking down the shed.

 

Gardenapril

Garden april

There is now a flat space ready for the garden room though first the herb wall needs to be finished and the fences replaced. It's coming along though and Toby is coping suprisingly well with the changes. I think it helps that he loves his new swing chair and I feel better at the loss of the climbing frame when I see him spinning and rocking and squealing with delight!

 

Toby swing

 

Toby swing2

Well, it's nice to be here again and I'm looking forward to catching up with what everyone has been up to but for now I'm off to do some more thinking and list writing. Will be back soon, hopefully with a clearer head!