autism · general stuff

balance under a big sky

 

Road

Start

Three

Four

Five

Snail

Darker

Next

Wildsky1

Wildsky

 

 

Sometimes being a parent means that you loose your sense of self a little. You are so focused on ensuring that everyone is fed, has clean clothes, that there's milk in the fridge, toilet rolls in the cupboard and no-one has to go without breakfast because the bread has gone stale, that there's not much time for anything you might want personally. I've felt a little like that recently. It's probably magnified in our household because of Toby's constant needs and the intensity of the school holidays but I'm sure I'm not alone in feeling a little parental self-annihilation at times. Over the last few months we've had a busy time helping Amy research Unis, H has been away from home more than before as his father is very poorly and overall the balance of life has been more hectic than relaxed. I've also been listening to friends excitedly talk about family holidays and have felt a pang of envy because we don't holiday anymore (it's too stressful for Toby and so by extension for us too). It's not that I particularly wanted to go away anywhere this summer but I've realised that I do miss the excitement of doing something new, of being somewhere different and of having that sense of being on an adventure. So, earlier this week I left H in charge of after dinner parenting duties, took my backpack, camera and walking boots and drove out into the countryside. 

I'm never usually out of an evening, unless it's for a school parents evening or a concert that Amy's taking part in, so just being out in the car at 7pm is a novelty for me and it did feel something like a small adventure. I drove to a local hill which has lovely views over the surrounding countryside and just walked until the sun disappeared below the horizon. I saw lots of rabbits, heaps of the big Roman snails particular to the hill, heard the alarming bark of a muntjac deer near by and saw the bats start to flit. Sadly I didn't get to see a much-longed-for barn owl but heading back towards the car I was treated to a magnificent sky overhead and bathed in a sense of well-being and calm. Although my tiny adventure was less than 2 hours long and took place only a 15 minute drive away from home it did help enormously. Sometimes you just need to be humbled under a big sky.

It has reminded me that although being a mum to an almost-adult with special needs perhaps brings more intense parenting, there can still be time for me if I can be flexible with when that can be, what form it can take and if I embrace the small and simple pleasures that exist all around us but are sometimes overlooked and undervalued. It's my plan to keep finding small and fortifying adventures on my own doorstep and I'd love to hear about what small adventures you'd choose to have – tell me in a comment below if you have time to x

 

crafts & knitting · garden stuff · general stuff

Late Summer

 

Wildflowersocks

 

Dream stripes

 

Points

 

Beets2

 

Snail1

 

Snail3

 

Butterfly

 

Cosmos buds

 

Sunflower

 

Sunflowr

 

Sflower

 

Hazy

 

Our summer days have merged into a flow of lazy, mostly at home days and I'm at that point in the school summer hols where I can no longer remember which day of the week it is.

We've been spending lots of time outside; swinging gently in the shade or lazing on a picnic blanket in the garden; walking in the woods and over hills; riding on the little steam train near here and eating lots of ice-cream. It's been mostly relaxing and Toby is coping. He's also beginning to adapt to the lack of pudding that I mentioned in the previous post and though it's still a work in progress it looks like petit filous yoghurts are becoming his new pudding of choice, which is a great relief!

Out in the garden things have been really productive this year. I'm still picking french beans, raspberries, rocket and kale and the cylindrical beetroot that I planted from seed has done really well and is deliciously fresh – seems I'm not the only one to think that either. Everything is still flowering too, the little oregano flowers are attracting lots of bees, hoverflies and butterflies and we've been watching the rapid growth of a surprise self-seeded sunflower.

There's even been a little knitting going on: I've finally finished and blocked a shawl that has been languishing in a bag for a year or more (Dream Stripes by Berangere Cailliau, details here); have quite a few pairs of socks on the go, as I'm clearly still under the spell of the sock knitting fairy (above are Wildflower and Honeycomb socks by Olivia Villarreal, details here) and there have even been a few animals emerging from my knitting basket too (more on that another time).

We've got exactly a week left until school starts again so we're just going to keep things simple here and try to savour the last summer break days, because days of warmth and sunshine are now numbered for this year. Mornings are becoming hazier and cooler, the evenings are shortening noticeably and the leaves in the woods are taking on that late summer dusty green. Autumn is waiting in the wings.

 

PS: I knew there was something I'd forget and that's the pictures of the tiny cucamelons that a kind friend gave to me as seedlings. Incredibly and despite unwanted attention from slugs, snails and squirrels they actually have tiny fruits!

Cucum

Cucumelon

 

 

autism

The great pudding crisis

 

Bowl of plums

 

Washingplums

 

Washing

 

Jars

 

Jam jars

 

Train spotting

 

Train ride

 

Final pud

 

Being autistic, Toby's life is governed by a requirement for routine, especially when it comes to food. In his mind certain foods go together and can never be eaten alone, for instance crisps must always come in a bowl with a chaser bowl of marshmallows and petit filous yogurts must be eaten in pairs, first a raspberry one and then a strawberry one. He likes the same tea every day after school (or for lunch at weekends and school hols); first a crispy baked potato with the potato flesh scooped out and mashed with tuna and mayo to a consistency that is crumbly and not too wet. The mash is always eaten first and then before he eats the skins his plate must be cleared from the table. Next comes a slice of chocolate fudge cake on a pink plate and after a drink comes pudding eaten with a well worn blue spoon.

Now when I say pudding you've probably guessed that it has to be a particular kind and you'd be absolutely right. Pudding to Toby has always been Hipp Organic apple and blueberry baby food and he has eaten a jar of it every single day since he was around 5 months old. Now to my reckoning that means he will have consumed around 5,475 jars of this baby food over the last 15 years and that will be a conservative estimate as some days he has one after his evening meal too! Though not any longer it seems. In fact Hipp organic are about to wonder why sales of their apple and blueberry puds have fallen off a cliff because unfortunately for Toby they have changed not just the packaging (which has always caused him temporary consternation in the past) but also the fundamental taste with a brand new recipe. Poor Toby is bewildered to say the least and mealtimes look like being difficult for him until I can find a replacement pudding that fits the bill. Still it is an opportunity to introduce something a little more age-appropriate and I won't miss the funny looks I get in the supermarket when I have a basket full of baby food! 

Anyway, apart from pudding catastrophes (and a distinct lack of summery weather) we've been having a good summer so far, busy with the usual summer activities of plum jam making, garden time, wood walks and visits to the local garden centre for rides on the miniature steam train and then an ice-cream. All in all Toby is coping with the change in routine, hopefully that will continue for the other half of the school hols and hopefully there is a perfect pud for him out there somewhere, please keep your fingers crossed ๐Ÿ™‚